Tuesday, September 25, 2012
It's a good thing....
It's a good thing we were wearing our Alex Reinis "Be Awesome" bracelets.
Clerical errors abounded today and there was no CT as scheduled. We were all excited and hopeful to hear that the tumors in Terry's throat and lymph glands were gone as we've been praying- please God. But not this week. We're still on the roller coaster.
Terry had labs and his port irrigated and cleaned. We got loved on by the nurses and techs and one oncologist. We saw the kid who got diagnosed with cancer when he thought he was just getting his tonsils out - he was bald but had his trach removed and looked great. He told us his mid-treatment CT showed no tumor at all...we hugged and rejoiced with him in the middle of the hall. We saw one of our favorite breast cancer ladies looking really fragile. Her beautiful blue eyes lit up when we came in, we got to pat her gently and pray for her.
Then it was sort of all downhill. The CT lab we were assigned didn't have the correct machine for the diagnostic CT ordered. They found another lab with an open appointment and we rushed across town to get there in time. Terry filled out the required pages and pages of paperwork and we waited for about an hour in a room full of crying children and miserable people.
They called him back, I settled in for another wait .... and he reappeared. Too soon. The notes about the reaction he gets from the drugs administered for the CT and PET scans didn't get sent along with the orders. No CT without a week of prednizone and antihistamines and something else I can't remember.
We have to wait. Another. Whole. Week. Bummer.
It's honestly not THAT big a deal. It is so great that he didn't get the drugs which would have made him really sick and put him in the hospital overnight. What does just a week of drugs that make him feel nauseous matter in the light of the long summer he has already so valiantly persevered?
But we both got teary. And the nurse got teary. One of us got mad and just went to the parking lot to get the car. (Me) One of us asked careful questions and made the game plan for the next week. (Terry) We got apologies from every direction.
We sat in the car and cried some and laughed some. It's just so stinking disappointing. We are determined to be found faithful, even if we cry and get mad first. It's no stretch for Terry to 'be awesome.' I'm working on it.
God is good and faithful.